My Data, Our Health! Join us to ensure information about our health, collected by others, is safe, secure and being used for the benefit of all.
Take Action
My Data, Our Health! Join us to ensure information about our health, collected by others, is safe, secure and being used for the benefit of all.
Take Action
My Data, Our Health! Join us to ensure information about our health, collected by others, is safe, secure and being used for the benefit of all.
Take Action
My Data, Our Health! Join us to ensure information about our health, collected by others, is safe, secure and being used for the benefit of all.
Take Action
My Data, Our Health! Join us to ensure information about our health, collected by others, is safe, secure and being used for the benefit of all.
Take Action
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My Data, Our Health! Join us to ensure information about our health, collected by others, is safe, secure and being used for the benefit of all.

My Data, Our Health! Join us to ensure information about our health, collected by others, is safe, secure and being used for the benefit of all.

The digital transformation of health systems is generating vast amounts of data about us. Our health data contains intimate information about our medical histories, diagnoses, and treatment plans. Yet, we often don’t know where it goes, who is using it, and how. Effectively used, our health data can save lives. It can advance health-related research and make our health systems more efficient, effective and affordable. It is important that health researchers and planners have access to our data. However, this access needs to come with certain conditions and guarantees. It is essential that laws and regulations are in place to ensure we maintain control and ownership over that data and to protect our individual rights and privacy.

My Data, Our Health is raising the following questions:

1 Who determines how our health data is collected, managed, stored and disposed of?
2 What are the limits of this authority which determines how our health data is collected, managed, stored and disposed of?
3 How can we ensure that our health data is being used for public benefit purposes?
4 How much access and control do and should individuals have over their health data?
5 How can we ensure that our ownership and control over our health data is respected and protected?

Join the Campaign

Where’s My Data?

Go to your usual health centre and ask for your electronic health records.
After your visit, tell us about your experience through our survey.
If you want to tell us more, send us a video of your experience and use it online. You can upload the video to the survey.

Watch about our campaign

Watch our compilation video

Spread the Word!

Help us spread the word by amplifying key campaign messaging on social media.


Use our unique AR filters and help raise awareness about control over your personal health data in a fun and engaging way!

Write to Your Elected Representative!

Use your voice to support the call for a global health data governance framework among parliamentarians and governments.
Write to your elected representative to help prioritise Health Data Governance in the global health agenda!

On the Ground Updates

We’re working with incredible people around the world! See the actions taken by campaigners in their communities!


Join them and let others know about your experiences!

GFI X Ennasso Workshop in Tanzania

Resources

Key Messages

Want to learn more about this campaign? Dive into our key messages.

Campaign and Mobilisation Toolkit

Use the posters and templates in the communications toolkit to create your own material to promote on social media.

Advocacy Letter

Use the advocacy letter template for elected representatives.

Related Articles

My Data Our Health: A Grassroots Movement for Better Health Data Governance

Health Data Governance – a Chance To Get It Right

Launch of the #mydataourhealth Campaign: Making Health Data Governance Everybody’s Business

My Data Our Health: A Global Campaign on Our Personal Health Data

My Data Our Health: Are We There Yet?