#MyDataOurHealth is a global campaign to bring attention to the massive potential of health data to improve health for all, and the urgent need for a governance framework that enables its safe, equitable and beneficial usage.
Our health data holds the potential to cure ‘untreatable’ diseases, accelerate medical research, improve health decision making and foster greater cross national collaboration.
But who determines how our health data is collected, managed, used, stored and disposed of? What are the limits of this authority? How can we ensure our health data is going to be used solely for public benefit purposes? How much access and control do and should individuals have over their health data? How can we ensure this ownership and control is respected and protected?
We call for a global health data governance framework, that is:
- Adopted at the World Health Assembly in 2024
- Subsequently integrated into national legislation
- Underpinned by human rights centric principles