The digital transformation of health systems is generating vast amounts of data about us. Our health data contains intimate information about our medical histories, diagnoses, and treatment plans. Yet, we often don’t know where it goes, who is using it, and how. Effectively used, our health data can save lives. It can advance health-related research and make our health systems more efficient, effective and affordable. It is important that health researchers and planners have access to our data. However, this access needs to come with certain conditions and guarantees. It is essential that laws and regulations are in place to ensure we maintain control and ownership over that data and to protect our individual rights and privacy.
Go to your usual health centre and ask for your electronic health records.
After your visit, tell us about your experience through our survey.
If you want to tell us more, send us a video of your experience and use it online. You can upload the video to the survey.
Watch about our campaign
Watch our compilation video
You can scroll horizontally and vertically to see the complete dashboard. You can access this page and the dashboard in French, Spanish, or Indonesian by using the translation plugin at the bottom right of the screen.
Help us spread the word by amplifying key campaign messaging on social media.
Use our unique AR filters and help raise awareness about control over your personal health data in a fun and engaging way!
Use your voice to support the call for a global health data governance framework among parliamentarians and governments.
Write to your elected representative to help prioritise Health Data Governance in the global health agenda!
We’re working with incredible people around the world! See the actions taken by campaigners in their communities!
Join them and let others know about your experiences!
🎙️ Tune in and Listen to our “My Data Our Health “ Youth Ambassador Henry Mathayo 📊🏥#Repost @henrizey
— Imara Leadership Initiative (@ImaraLeadership) August 15, 2023
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🎧 The latest episode of ‘My Data, Our Health’ on the AFYA Soga platform! @afyasoga Discover insights on safeguarding your health data and ensuring responsible usage. pic.twitter.com/xLH1OcaxlL
Ghanaian Member of Parliament, Hon. Betty Krosbi Mensah (@HonKrosbi) has added her voice to the #MyDataOurHealth campaign and called for “a robust and central [health] data system” for public and policy benefit.#CMGhana #HealthForAll @WHOGhana pic.twitter.com/llORLX6BVk
— Curious Minds Ghana (@cmghana) January 17, 2024
Have you heard of the #MyDataOurHealth campaign that has gone viral? Well how safe is your #healthdata and is there a binding health data governance or framework in place that ensures your data is safe when you leave it at the health facility? Well hear from @GasNet07 #tanzania… pic.twitter.com/LTfrGudd15
— EANNASO (@eannaso) August 19, 2023
In #Burundi, the partnership between CSOs and the government is strong but we need to have a regional #HealthDataGovernance policy in place. This is the call from #BAPUD to @mspls_bdi and @jumuiya #MyDataOurHealth @Trans4m_Health @BeaNyamwenge @FDSmith_ @GFIinitiative @OmukaHub… pic.twitter.com/PbQ8LDEhAT
— EANNASO (@eannaso) July 24, 2023
@MOH_Kenya have a data protection act specific to health. This is a call from @YEMKenya team. Do you know if there is a #HealthDataGovernance policy or framework in place in your country? As @eannaso through the #MyDataOurHealth campaign we are calling out to @jumuiya to address… pic.twitter.com/xmdRJ78s2x
— EANNASO (@eannaso) July 27, 2023
Guess who is at #WDC it’s the @Zamara_fdn team from #kenya and we asked them about #healthdata and the ongoing #MyDataOurHealth campaign. Listen in pic.twitter.com/YlIb5atqj0
— EANNASO (@eannaso) July 19, 2023
Key Messages
Since the launch of the #MyDataOurHealth campaign on 23 January 2023, remarkable progress has been made in raising awareness on the issue of #healthdatagovernance among the public, the media and politicians!
Learn more: https://transformhealthcoalition.org/my-data-our-health/
#HealthData #DigitalHealth #HealthForAll
How can we ensure this data is being used for public benefit purposes?
Send a joint letter to the Ministry of Health ahead of the #WHA in May 2024!
Learn more:
https://transformhealthcoalition.org/my-data-our-health/
#MyDataOurHealth #HealthForAll #DigitalHealth
Data about our health is constantly being collected, yet we don’t know where it goes, who is using it or how it is being used.
Do you have access to your health records? Take action and find out: bit.ly/WheresMyData
#MyDataOurHealth #HealthForAll #DigitalHealth
Effectively used, our health data can save lives. However it can also be used to discriminate against us or deny us access to services.
How much access and control do you have over your personal health data? Find out here: bit.ly/WheresMyData
#MyDataOurHealth #HealthForAll #DigitalHealth
We need clear rules that ensure our health data is collected, used, stored and disposed of in a safe and secure manner, that ensure we retain ownership and control over it, and that set out the conditions under which it can be used for public good purposes.
Find out if you have access to your health data: bit.ly/WheresMyData
#MyDataOurHealth #HealthForAll #DigitalHealth
Health data sharing can advance medical research and strengthen our health systems. Do you have the ability to share your health data without compromising on your privacy?
Learn how we can ensure ownership and control is respected and protected: bit.ly/WheresMyData
#MyDataOurHealth #HealthForAll #DigitalHealth
Try the #MyDataOurHealth AR filters and spread awareness about control over your health data in a fun way!
: Watch the video to learn how to use the filter.
Now you can take action and find out how much access you have to your health data: bit.ly/WheresMyData
#HealthData #DigitalHealth #HealthForAll
Have you tried the #MyDataOurHealth AR filter yet? Raise awareness about control over your personal health data in a fun and engaging way!
: Watch the video to know how to use the filter.
Now you can take action and find out how much access you have to your health data: bit.ly/WheresMyData
#HealthData #DigitalHealth #HealthForAll
There need to be minimum global standards, grounded on the #HealthDataGovernance Principles, to ensure the same rights and conditions of use of #healthdata apply across countries and regions.
Join the campaign here: bit.ly/WheresMyData
#MyDataOurHealth #HealthForAll #DigitalHealth
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