Transform Health is encouraged by the growing momentum around the need for stronger data governance, including the recently published article “Towards an international data governance framework”. While we welcome these moves, we are also keen to ensure stronger governance for health data specifically, which we feel is more than just a sub-category of data, and merits its own specific governance structures. 

Just last week, over 90 organisations signed onto a global letter  calling for health data governance to be on the agenda of the 152nd WHO Executive Board meeting in January and the 76th World Health Assembly in May and for a resolution to initiate the development of a global health data governance framework. In less than a week, the number of organisations joining this call has grown to over 120!

We are keen to ensure stronger governance for health data specifically, which we feel is more than just a sub-category of data.

 As the Health Data Collaborative (HDC) Stakeholder Representatives Group wrap up  their first face-to-face meeting since the COVID-19 pandemic, and as we look ahead to next year’s WHO Executive Board meeting and World Health Assembly, Transform Health would like to set out why we need and what we envisage by a "global health data governance framework": 

Advocating for stronger health data governance 

Advocating for a global health data governance framework remains a  key priority for Transform Health . We believe that such a framework would lay the foundation for improved public trust in health data systems where individuals feel protected, respected and in control of their own data while allowing institutions working to protect the health and well being of the population to access and use it for the public good. 

Transform Health partners are calling for health data governance to be on the 2023 World Health Assembly agenda

Transform Health partners are calling for: 

Transform Health is committed to help coordinate the engagement of different stakeholders in the development of a global health data governance framework and to ensure it is socialised and gains broad acceptance across different countries and regions and gets adopted and domesticated into national legislation. 

We look forward to collaborating with WHO, governments and partners to help advance this agenda - to strengthen equitable and responsible health data management to ensure it maximises public benefit within and across borders, whilst safeguarding data privacy, ownership, and rights.