Request for Proposals: My Data Our Health Mobilisation Campaign

Transform Health, is setting up a mobilisation campaign called My Data Our Health. The campaign will be piloted in East Africa (Kenya, Uganda and Tanzania) and in West and Central Africa (countries to be determined). The campaign will focus on the issue of health data and the way it is regulated. Transform Health is inviting youth and women-led community based organisations and those representing marginalised and key populations in West and Central Africa to submit proposals for small grants (no more than 8,200 Euros) to engage in the campaign. In addition to the small grants provided, the selected organisations will be supported through capacity development and with tools and assets to enable them to mobilise their supporters and engage with authorities and the media. As part of this campaign, Young Experts: Tech for Health, an independent youth network that provides insights and counsel to Transform Health on matters relating to youth, will be leading the recruitment and support for youth-led organisations in the region.

Background

Digital transformation is synonymous with computational capacities to collect, store, and analyse vast amounts of personal data. This data can be used to mount more effective responses to the health needs of a population. It can also be used to marginalise and exclude certain groups from health benefits (such as health insurance) or services (sexual and reproductive health and rights), or to deepen social surveillance and control.

 

Current public debates around data governance focus on issues of individual privacy and data security. However when it comes to health we need to balance individual privacy and security with the health needs of the population. The health data of each one of us holds the key to the well being of others.

The campaign

Transform Health is launching a mobilisation campaign to raise awareness and galvanise action on the issue of health data and to encourage a public and political conversation on the following set of questions:

● Who determines how health data is collected, managed, used, stored and disposed of?
● What are the limits of this authority?
● How can we ensure this data is going to be used for public benefit purposes?
● How much access and control do and should individuals have over their health data?
● How can we ensure this ownership and control is respected and protected?

At the heart of this campaign is the question of trust, with those collecting and using our health data (including government departments), and in government authorities, to ensure they establish the laws and regulations that will ensure our data is used to keep us healthy – now and in the future.

 

We will be testing the mobilisation model of the campaign in East Africa with our partner KANCO and in West and Central Africa, for wider replication across other countries and regions.

Overall objectives of the campaign

The overall objective of the campaign is to contribute to the coalition’s goal of ensuring more effective health data governance.

 

The coalition’s objective is to influence governments so they support a global health data governance framework underpinned by a set of health data governance principles through a resolution at the World Health Assembly in May 2023. The coalition will then work with partners to encourage governments to integrate this framework into national legislation.

Mobilisation objectives

1. Generate a public debate on health data governance that is based on people’s lived experience and concerns over health data.
2. Increase awareness and understanding among Parliamentarians of the issue of health data governance.

Underlying assumptions of this campaign

 

The campaign was conceived based on the assumption that the lack of public demand on politicians, most of whom grew up in an analogue world, means weak political incentives to debate and pass effective regulation on health data.

 

As a result people face the risk that their health data may be misappropriated and used in ways they may disapprove of, while researchers and health managers are unable to leverage the potential of population health data to make new discoveries and to improve the system. A mobilisation campaign will raise public and political attention to this issue and encourage more effective political action by a more informed cadre of politicians and provide the necessary support for a global health data governance framework to be adopted.

 

Organisations eligible for grants

 

Small grants will be offered to community based organisations to enable them to engage and mobilise their constituencies to raise awareness and build a movement on the issue of health data governance.

 

Applicants must fulfil the following criteria:

 

Criteria Documentation required
Be formally registered as a not for profit,
organisation for not less than 1 year with its
operations in West and Central Africa.
Registration Documents Banking Account
Details in the name of the
organisation issued by the bank itself. (for
eg. a letterhead with the bank and account
details)
Adhere to the principles of Transform Health. Organisation’s charter and strategy
Letter of Intent to join Transform Health
Committed to the objectives being pursued
by Transform Health.
Adhere to sound financial management
protocols as set out in the Amref guidelines.
Must be able to prove they are youth and
women-led community based organisations
and those representing marginalised and
key populations.
Documents proving this may include:
Organisational structure, legal registration,
statutes, among others
Must be community based and count on a
membership or supporter base.
Organisation’s Charter
Must have previous experience on issue
based campaigning and demonstrate how
the issue of health data governance is
relevant and important to them.
Provide examples of past campaigns

 

Proposal submissions process:

 

Applicants are invited to submit a costed proposal, using the template in the Appendix, for an
amount ranging from 5,000 Euros to a maximum amount of 8,200 Euros to Transform
Health (beatrice.okech@transformhealthcoalition.org) no later than 21st July.

 

Approval Process

● 6th July – 21st July: Submission of proposals.
● 22nd July – 29th July: Proposal review, shortlisting and recruitment.

Grant funding will be for a year starting in November 2022 to November 2023.

 

Please note the awards are dependent on overall funding being awarded for this project,
if such funding is not secured, the grants will not be awarded.

 

Appendix
PROJECT TEMPLATE

Contact Information ● Organisation name
● Email address & physical address
● CEO/ ED full name & contact information
Proposed county(ies) of implementation.
Brief description of the organisation.
● Organisational charter
● Mission and vision statements
● Registration status (annex proof)
Problem Statement
● What issue will you be addressing?
● Why is your organisation best placed to address this issue?
Overview of proposed scope and scale of partnership in the project
Proposed Project Goals and specific Objectives (Objectives as measurable outcomes)
Monitoring & Evaluation Plan
● How will you track progress of the intervention?
● How will you measure success?