Consultant to carry out landscape analysis to inform a global Health Data Governance Framework

Details of work required: carry out a landscape analysis of digital and data governance frameworks, tools and standards, including identifying strengths/weaknesses/gaps, to help inform the development of global health data governance framework.

Expected duration: the work should ideally be carried out between 27 July – 23 September.

Background

Data for health in the digital age has the power to accelerate progress towards UHC. In the health sector, Digital and Data governance includes a collection of processes, roles, policies, standards, legislation and metrics that ensure effective and efficient use of information in improving health outcomes. However, there is currently no global framework to inform the governance of health data, especially one that is underpinned by equity and human rights, so that all people and institutions can share, use & benefit from health data. Global alignment will promote a common understanding of what data governance should accomplish to ensure it supports public good and UHC.

There is growing consensus on the need for stronger global governance of health data. For example, the outcome statement of the 2021 WHO Health Data Governance Summit, called for a ‘common framework and good data governance practices underpinned by a globally unifying set of principles’, and the Lancet/FT commission on Governing Health Futures, recommended a new approach to the collection and use of health data [that prioritises] protecting individual rights, promoting the public good potential of such data.

The Health Data Collaborative (HDC) was launched in March 2016 following a 2015 high-level summit on Measurement and Accountability for Results in Health, endorsement in a 2015 Roadmap for Health Measurement and Accountability and a 5-Point Call to action. The collaborative provides a platform that leverages and aligns technical and financial resources (at all levels) to country owned strategies and plans for collecting, storing, analysing and using data to improve health outcomes, with specific focus on SDG targets and communities that are left behind.

The Health Data Collaborative’s Digital and Data Governance Working Group (DDG), working together with Transform Health, aims to lead a process to develop an equity and human rights based global Health Data Governance framework, which will help establish the processes and responsibilities that ensure the quality, security and equity of the data and digital tools in the sector.

The framework will be collaboratively and inclusively designed to ensure it is informed by insights and expertise from diverse stakeholders and geographies. It will help countries holistically assess, plan, and prioritise interventions and investments to strengthen their digital and data ecosystem.

It is important that a global health data governance framework is underpinned by a core set of driving principles, such as:

1. Governance Principles for Data Action, Secretary-General’s Data Strategy

2. Data Principles, WHO

3. Health Data Governance Principles, Transform Health

Scope of work

In support of this work, Transform Health, together with the HDCs Digital and Data Governance (DDG) Working Group, is seeking to recruit a consultant to conduct a literature review of existing data and digital governance (or other relevant) frameworks and tools. This will include the follow key activities:

  • Identify, and analyse existing digital and data Governance (or other relevant) frameworks, resources, tools, standards and evidence (these may not be health specific). This should be guided by inclusion/exclusion criteria that will be proposed by the consultant and reviewed and approved by the oversight group (for finalisation with the Consultant).
  • Map similarities and uniqueness across each framework, key positive features/elements, as well as potential gaps. ● Produce a final synthesis/analysis document comparing the frameworks (including identifying strengths and weaknesses) and highlighting key findings, with recommendations for the future development of a global health data governance framework and key elements that should be considered/included.

The consultant will work closely with a small oversight group (comprising members of the HDC’s DDG working group and of Transform Health’s Policy Circle) throughout the process, sharing progress on the inclusion/exclusion terms, initial compilation of resources, and organisation of the repository. The oversight group will play an advisory role throughout the process, including providing support and regular feedback to the consultant (through feedback on deliverables, as well as ad-hoc calls, as needed). The DDG WG, other HDC members (including other HDC WGs), and the Policy Circle will also review and provide feedback on the draft summary document.

Key deliverables and deadlines

1. Index of reviewed resources (+ summary of key tenets of each) – can be a spreadsheet or similar format

2. Repository of inventoried frameworks/files, (to be publicly available) – proposed format for the repository will be provided

3. Landscape analysis document (approx 10-15 pages long + annexes) – 1st draft shared for feedback by 5 Sept; final draft submitted by end of contract

a. Narrative Context/Introduction

b. Analysis of frameworks, highlighting key findings (e.g. with content and/or components highlighted for each, key positive features/elements, as well as potential gaps)

c. Recommendations for the development of a global health data governance framework

Timelines

  • RFP published: 12 July 2022
  • Deadline to submit proposals for consultancy: 21 July 2022 (09:00 CET)
  • Consultant selected: 25 July 2022
  • Consultancy start date: ~28 July 2022 (induction call)
  • Deadline for completion of work: 23 September 2022

Profile and experience

We are looking for a consultant with strong experience working with health data/digital governance in LMICs and tools. The consultant should have strong research and analytical skills, with the ability to synthesise findings and make clear recommendations. Preference will be given to consultants based in L/LMICs.

Application process

To apply, please submit the following to

kirsten.mathieson@transformhealthcoalition.org by 09:00 CET on 21 July:

  • Your CV and cover letter outlining your experience relevant to this consultancy.
  • Your proposed daily rate and number of days to carry out this consultancy, including a breakdown by task.

    About Transform Health

    Transform Health is a global coalition of organisations dedicated to achieving health for all in the digital age. Transform Health sets out to build a global movement that brings together organisations and institutions across different sectors, committed to achieving universal health coverage by 2030 by expanding the use of digital technology and increasing access to data. We campaign and collaborate with the individuals, communities, governments, organisations and institutions that are most affected by the lack of access to equitable, affordable and high-quality healthcare.

About the Health Data Collaborative

The Health Data Collaborative (HDC) is a joint effort by multiple global health partners to work alongside countries to improve the availability, quality and use of data for local decision-making and tracking progress toward the health-related Sustainable Development Goals (SDGs).

The HDC provides a collaborative platform that leverages and aligns technical and financial resources (at all levels) to country owned strategies and plans for collecting, storing, analysing and using data to improve health outcomes, with specific focus on SDG targets and communities that are left behind.

Our role is to build upon existing efforts by establishing a network of working groups that will address specific technical issues and identify and fill technical gaps.