Capacity Building Workshop West & Central Africa Popular Mobilisation Campaign

Request for Proposals

Transform Health, is setting up a mobilisation campaign called My Data Our Health. The campaign will be piloted in East Africa (Kenya, Uganda and Tanzania) and in West and Central Africa (countries to be determined). The campaign will focus on the issue of health data and the way it is regulated. Transform Health is inviting non-profit organisations to submit proposals to plan a capacity building workshop in Senegal from 23rd – 25th August 2022 to kick off partner engagement within the West and Central Africa region for the campaign. During this workshop, Transform Health will build the capacity of pre-selected youth and women-led community based organisations and provide them with tools and assets to enable them to mobilise their supporters and engage with authorities and the media.

Background

Digital transformation is synonymous with computational capacities to collect, store, and analyse vast amounts of personal data. This data can be used to mount more effective responses to the health needs of a population. It can also be used to marginalise and exclude certain groups from health benefits (such as health insurance) or services (sexual and reproductive health and rights), or to deepen social surveillance and control. Current public debates around data governance focus on issues of individual privacy and data security. However when it comes to health we need to balance individual privacy and security with the health needs of the population. The health data of each one of us holds the key to the well being of others.

The Campaign

Transform Health is launching a mobilisation campaign to raise awareness and galvanise action on the issue of health data and to encourage a public and political conversation on the following set of questions:

● Who determines how health data is collected, managed, used, stored and disposed
of?
● What are the limits of this authority?
● How can we ensure this data is going to be used for public benefit purposes?
● How much access and control do and should individuals have over their health data?
● How can we ensure this ownership and control is respected and protected?
At the heart of this campaign is the question of trust, with those collecting and using our health data (including government departments), and in government authorities, to ensure they establish the laws and regulations that will ensure our data is used to keep us healthy – now and in the future.

We will be testing the mobilisation model of the campaign in East Africa with our partner KANCO and in West and Central Africa, for wider replication across other countries and regions.

Overall objectives of the campaign

The overall objective of the campaign is to contribute to the coalition’s goal of ensuring more effective health data governance. The coalition’s objective is to influence governments so they support a global health data governance framework underpinned by a set of health data governance principles through a resolution at the World Health Assembly in May 2023. The coalition will then work with partners to encourage governments to integrate this framework into national legislation.

Mobilisation objectives

1. Generate a public debate on health data governance that is based on people’s lived experience and concerns over health data.
2. Increase awareness and understanding among Parliamentarians of the issue of health data governance.

Underlying assumptions of this campaign

The campaign was conceived based on the assumption that the lack of public demand on politicians, most of whom grew up in an analogue world, means weak political incentives to debate and pass effective regulation on health data.

As a result people face the risk that their health data may be misappropriated and used in ways they may disapprove of, while researchers and health managers are unable to leverage the potential of population health data to make new discoveries and to improve the system. A mobilisation campaign will raise public and political attention to this issue and encourage more effective political action by a more informed cadre of politicians and provide the necessary support for a global health data governance framework to be adopted.

Scope of Work
Work duration: 22nd July – 30th August 2022

● Prepare a costed budget for the workshop in Dakar, Senegal
○ 2.5 day conference package for 24 participants.
○ Accommodation for 10 participants for 3 nights on Half Board, flight costs, hotel transfers, travel & out-of-pocket allowances.
○ Please note this can be combined with the item below, as this might result in a lower price.

● Book a hotel venue with a 2.5-day conference package for 24 participants and accommodation for 10 participants on Half Board for 3 nights.
● Disburse out-of-pocket allowances for 10 participants.
● Invite partners to the workshop.
○ 6 people from 2 countries outside of Senegal, preferably from the countries within the West and Central African region selected for the Landscape Analysis and
○ 8 from Senegal (preferably 4 from Dakar, and 4 out of town).
○ Transform Health will share a list of participants to invite.
● Book return flights and airport transfers for 6 participants from 2 countries outside Senegal.
● Disburse transport allowances for participants from within Senegal. This may include reimbursing travel costs for the participants travelling from outside Dakar.
● Compile reports on financial expenditure and supporting evidence following the workshop.

Proposal submission process

Please submit the following by 22nd July to beatrice.okech@transformhealthcoalition.org.

● A 2 page proposal for how you would approach this work by the specified deadlines, including a focus on cost implications.
● A budget with a breakdown of costs – inclusive of all additional costs, such as hotel transfers as well as any other costs necessary to complete the scope of work above.
● Proof of registration documents for the bidding organisation.
● Certified Bank Account details for the bidding organisation.